Spoke Your Mind

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Young Onset Film
1 Reply

Started this discussion. Last reply by Kate Preskenis Nov. 1, 2009.

How are you affected by Young Onset?
4 Replies

Started this discussion. Last reply by Kimberly Lavoie Nov. 14, 2009.

Links to share?
4 Replies

Started this discussion. Last reply by Emily Aug. 4, 2009.

 

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Latest Activity

Spoke Your Mind now has WordPress
March 5
This Network is now displaying search results for ""Alzheimer's Disease" "Young Onset Dementia" Dementia "Lewy Body" "Early Onset" Neuroscience "
March 5
Vote for "The Music in Hugh", a short film we submitted to the Neuro Film Fest. http://www.youtube.com/neurofilmfest#p/c/B90313F0D99F14F8
March 1
Hi Eric and Shannon, You two are so inspiring! It would be fantastic to get COYOD to run marathons to support Spoke Your Mind! Physical fitness fundraisers are so appropriate to promote brain health. I love it! What I think would work- and I'd lo…
January 25
Hi Shannon, This is very exciting! I'd love to discuss ways you can help support Spoke Your Mind while you're in Seattle. Maybe we can get a team to run the Rock n' Roll marathon with you, and it can be the "Spoke Your Mind" team? I'm inspired by y…
January 15
Emily updated their profile photo
January 4
Emily added a video
This is an overview of Spoke Your Mind by creators Max Larkin and Emily Boardway. Spoke Your Mind is a project that serves Children Of those with Young Onset Dementia (COYOD) in 3 ways: 1.) On the road, 2.) Online and, 3.) On film. Watch this short…
December 11, 2009
Hi - My dad started showing signs of the disease at age 52 and diagnosed at age 54. My mom was his primary care giver. I know she did this because she loved my dad and wanted me to have as normal a life as possible. It was very difficult to witness…
November 14, 2009

Profile Information

How are you affected by Young Onset Dementia?
In 2006, my boyfriend's father was diagnosed at age 56 with Alzheimer's.

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Comment Wall (12 comments)

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At 10:05am on August 10, 2009, taryn said…
Hey Emily,

I hope you all are doing well and you were able to make it to your planned destination Sunday. Have a safe ride and keep in touch.
At 11:28am on July 27, 2009, Colleen Quigley said…
Hi emily
I just learned about your site and what you are doing from my fathers doctor. This is so amazing thank you for doing this. I believe that you are coming for a talk early august which im attending. My dad was just diagnosed with AD he is 56. It is very helpful to know that there are other young people out there dealing with similar situations
At 3:19pm on July 17, 2009, Paula Acosta said…
Hi Emily,

I just left a comment for Max, but I wanted to extend my gratitude to you as well for all your effort for this great cause. I also wanted to offer my services when you come to Austin. I am a native here with 32 years of history knowing people and places to organize events. Please let me know if I can help.

Thanks again for all your hard work!

Paula Acosta
acosta_paula@hotmail.com
512.653.6027
At 2:52pm on July 2, 2009, Andrea said…
It was really great meeting you and Max! Our conversation, although brief, was so helpful in making all of this not as crappy :)

Looking forward to hearing more about the trip an other coyods.

xoxo Andrea
At 7:57am on June 26, 2009, Ana Schwartzman said…
Hi Emily:
Hmmm. Maybe you had the wrong #--415-302-7543. Yes, I would be delighted to talk with you. I think what you two are doing is awesome and needed. I can meet this weekend or an evening next week. What about you guys?
Ana
At 10:41am on June 25, 2009, Joe Dillon said…
Great web site guys. Nice work!
Keep on peddling - see you soon.
-Joe
At 7:16am on June 23, 2009, Andrea "Andi" Shaw said…
Hey Emily, my email is pappioosemylove@yahoo.com I certainly will let Jamie and Marty know about joining. Thank you so very much for the time you so very much for the time you spent with us. Andi
At 6:43pm on June 3, 2009, Joy Walker said…
Thanks for the shout out Emily. It's good to hear from you.
At 11:20pm on June 2, 2009, Chris Torstenson said…
Hey Emily!

Portland is BEAUTIFUL! I can't believe it, but the past few days of sunny 80 degree weather, and the resulting inability to move a muscle makes me crave a nice rainy day :) How has the road treated you guys? It was soooo wonderful meeting you guys, and can't wait til our paths cross again!
At 3:52pm on May 8, 2009, Joy Walker said…
Hi Emily, so lovely to hear from you! It was great to find your site. I think you're on your bike trip at the moment? Best of luck! I would love to get together whenever you get back and have a moment. How did you guys get a link on the AA website? I'm finishing what is hopefully the last draft of my book and am sending out proposals; hope a publisher likes it! Its about the six months it took me to clean out my dad's house intertwined with the years I lived with him and took over his affairs.
 
 
 

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